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- Why the big divide? Why many in the Deaf community react strongly against the CI
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Why the big divide? Why many in the Deaf community react strongly against the CI
I vowed and declared I was not going to blog on the cochlear implant … at least not for the foreseeable future. But a dialogue that is occurring among Deaf bloggers, particularly those on DeafRead.com has resulted in an interesting comment that warrants further exploration.
Tony, over on All the Young Dudes wrote,
“You see, the fear and resistance to the cochlear implant, is because of what it represents, and not just because of misconceptions or the technology per se. I wish people would understand this point. There is a lot more substance to these fears that the Deaf community harbours, than deafies and hearies care to admit.“
This incredibly insightful comment illustrates an issue that has gone largely ignored by many on both sides of the debate. The resistance comes from fear, but it is not, as often thought (or at least, not only), fear of the unknown, or fear of having something surgically implanted under the skin, fear of deafness being cured, fear of the Deaf community disppearing, fear of the loss of sign language and culture, or any one of the myriad of comments heard.
It is a fear of something far greater. And yet it is based on a history of which few Deaf people, especially younger Deaf people are aware.
Most Deaf people can speak about the Milan conference where Deaf teachers were excluded from participating in the resolution that resulted in the abolition of sign language in educational settings. But it is not often that this situation is fully considered.
To fully understand the oppression that occurred in this act, let’s consider what emotions it evokes if we try to translate it to other situations.
What if, at a conference of teachers of Indigenous children, all Native American (or Australian Aboriginal and Torres Strait Islander) teachers were excluded - locked out of the room - from a debate about the best methodology for educating Indigenous children? Can you imagine the media and community condemnation? And imagine the result was abolition of all teaching in indigenous languages and the teaching of all Indigenous culture because the Western teachers thought that was the best way for them to fit in with white society… even for children who lived exclusively within Indigenous communities and spoke no English.
It is hard to imagine that we would accept the banning of education in indigenous languages and culture, even if you are a person who does not see their value. It is impossible for me to imagine that Indigenous teachers would be shut OUT of the conference room while this issue was debated and voted upon. The Australian government just said “sorry” for actions like these!
Let’s make it something different… Imagine you are a teacher with a Buddist faith in a Buddist school. Imagine being shut out of a conference room while Christian teachers debated whether you should be allowed to teach the students in your school about Buddist beliefs!
Or a blind teacher who favours the use of braille for teaching literacy being shut out of a conference discussing the methodologies of teaching literacy to blind children and children with low vision when current educational philosophies are favouring enlarged printed English, and auditory and phonetical methods.
Is it even comprehendable?
Imagine the humiliation. Imagine the message that is implicitly communicated. “Yes, you have the same education as us, but because your eyes don’t work you are not able to discuss this issue objectively - you are biased.” Or worse… “your reasoning faculties are impaired”!
This is just one well known example that to me demonstrates where the suspicion might come from - there are many, many more, as a quick flip (if such a thing is possible!) through Paddy Ladd’s book on Deafhood demonstrates.
You may well say, “well, but, that would never happen now!” But it does. Daily. “I asked about sign language, but the doctor told me he would never learn to speak if I used sign language” - said a parent of a 4 year old just last year.
“He was threatening the police officer, so we had to put him in a strait jacket,” said the arresting officer (2006). “I was telling her I wanted to hang myself,” said the Deaf person. (Would we accept tape over a person’s mouth to stop them yelling?)
“He didn’t stop when we called at him to stop cycling without a helmet, so we restrained him,” (by two officers pulling their vehicle in front of the cyclist, and then tackling him to the ground).
“How can she drive??! She cannot live independently, she is too disabled!” said the psychologist of a Deaf woman of normal intelligence with cerebral palsy in her legs, and consequent limp.
All the above examples are true. All have happened within the last few years.
You see, when you live with constant oppression, constant incredulousness of your profession of ability, a certain amount of defensiveness is inevitable - as is a desire to live your life free of having others repeatedly saying “How can you say your life is as full and fulfilling as mine? How can you not see your deficiency” … a desire to remove yourself from those who would call your very identity “insufficient” and thrust in your face all the time the “opportunity” to (maybe .. if you are one of the lucky ones) become “sufficient”.
The cochlear implant is not a “cure” for all deafness, and it is still completely unpredictable. No doctor will risk telling you it is sure to work - even if it is implanted early (”gotta do it before it’s too late”). There is so much about language and speech learning that we simply don’t yet know.
It always has amazed me. Educators of hearing people constantly are drilled about presenting all material in visual mode as 55% of adults are primarily visual learners, and kinesthetic modes for those who need to “do”, and not rely solely on our traditional Western auditory mode of education. And yet I have never heard a proponent of “Auditory -Verbal education to the exclusion of all else” ever consider what might happen for those children who are not strong in auditory learning genes. And I have searched for quite some time, but have not found any research into this at all.
On a rational level, I am neither for nor against the cochlear implant - many of my friends use it, some implanted as children, others as adults. None of them speak as a hearing person, and those whose speech is relatively clear had clear speech before the implant. NONE of them hear without visual cues - again, those who can “hear” when lipreading could do that already before the implant. Those who could not communicate without sign language before the implant cannot communicate without it now. All of them love it and use it constantly. Most of them identify as Deaf, and use sign language as a preferred method of communication, particularly in groups.
On an emotional level I find myself filled with apprehension when thinking about the implantation of babies and children. I know it can sometimes result in an individual being perfectly at home in groups of hearing people, not missing information or relationships. I think it is the uncertainty of it all - and the hours and hours that must be invested in getting a child to practice speaking and hearing, when I feel that as a result they miss out on just simply learning, and being a child.
To return to Tony’s comment, I think the biggest fear I have with the implantation of children and babies is how it places the burden of being able to access the most normal things in life onto the Deaf individual. The unfairness of that expectation causes my hackles to rise. As Elizabeth Hastings, the former Australian Human Rights and Equal Opportunities Commisioner said, disability is a part of ordinary human community. Why, then, can’t we accept that it is ordinary? Why must we continually ask others to be that which we are not… “perfect”?
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Hearing aids “more often than not insufficient”
Yesterday there was an despairing post on AllDeaf about a “sloping loss” (where the hearing loss was high frequency hearing loss) and that the audiologist had suggested hearing aids may not be the answer.
For many people, when they find out they have a hearing loss the first thing they look for is a quick medical fix - a consequence of our “everyone has to be perfect, trust the experts they know best, there is an answer for everything” medical model of illness, disease and disability. An unfortunate side-effect of being able to offer an answer for some things is that we expect an answer for everything.
However, as the title suggests from Neil Bauman’s latest post, Hearing Aids Are Not the Whole Answer, So Why Do We Act as if They Are?
Neil mentions five areas that need to be addressed by audiologist with their clients in order to achieve the best outcomes:
- Working through the grieving process with regards to the hearing loss so that the client is psychologically and emotionally adjusted to the reality of being hard of hearing. He notes that this first step is essential if the following four areas are to result in the best possible outcome for the client.
- Get properly adjusted hearing aids if hearing aids will help - and he suggests 99.9% of people will be helped with hearing aids.
- Get the appropriate assistive listening devices that are necessary to help in situations where hearing aids are not adequate. Directional microphones, hearing loops and FM systems can all help to block out background noise and help tune in to the desired source when the environment is noisy.
- Learn to lipread (also known as speech reading), so that sound is augmented by visual cues to help you “hear” what is being said.
- Learn which coping strategies work for you to help you hear and understand people. Adjustments such as getting close to the speaker, cutting out competing background noise, having light on the speaker’s face but not behind them, choosing round tables rather than square ones, will all help you to keep up with conversation.
It is important that both experts and people with hearing loss are explicit in their understanding that technology is just one of the many resources we have at our disposal, but that in the end (for the moment at least) there is no “cure” for deafness.
Popularity: 54% [?]
